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Stigma and Parental HIV

University of Edinburgh, UK

Helen Kay

Kay Tisdall

Jennifer Wallace

Children in Scotland, Edinburgh, UK

HIV (Human Immunodeficiency Virus) is experienced as a highly stigmatized disease by those with HIV and their families. Moreover, it has been argued that it is the stigmatized nature of HIV that separates it from other chronic illnesses (Bor and Elford, 1998; Geballe and Gruendel, 1995). Drawing from a recently completed qualitative study conducted in Scotland, this article examines the impact of HIV stigma on children and young people with a parent or carer with HIV. The starting point for the research (and for this article) is the perspective of the children and young people themselves. The article gives an account of their understanding of stigma, and explores the different methods that they have adopted to cope with the effects of living with such a stigmatized illness in the family. The article concludes with a discussion of the implications of this study for social work policy and practice with children and young people affected by parental HIV.

Key Words: affectedchildren and young people • childrenandfamiliessocialwork • parentalHIV • qualitative research • research with children • stigma

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